Story Intro & Author's Note
This is my new story that I’ve been working on since I was in eighth grade. I’ve been working and editing this story continuously for the past eight years and I now, after all this time, feel it’s ready to be shared with the world. I think. (My lack of confidence even after all the other stories I’ve shared is huge).
Anyway some information for some of you that do not know: Erythropoietic Protoporphyria is a real disease that people suffer from. The character in this story, Claire, suffers from this disease but only mildly. Many people who have E.P.P. are affected by the sun and temperature together which makes it really hard for them to go outside at all.
I first learned about E.P.P. on an episode of Extreme Makeover Home Edition that I was watching. A little girl who suffered from E.P.P. was in need of a better home to help her with her condition. I was curious to know more about this disease and did some research on what it was. A few mornings later, I was riding the bus to school and the song “The Other Side” by Bruno Mars began playing and...boom. This story was born.
While this story is about a girl who has a real disease, the characters and the plot are completely fiction. It is also written in a different form then the normal chapter form, as I felt that this was necessary for the story.
I also have not done a TON of research, but enough I feel to suit the needs for me to write this story. If you wish to know more about E.P.P. please look it up. Erythropoietic Protoporphyria is such a large disease that very few people know about and I’m hoping this story brings to light this disease.
On another note, if anyone out there reading this has E.P.P. or is suffering from any type of disease, be it physical or mental, you are not alone. You have other people out there who understand you and are here for you. Please. Keep fighting.
As always, thank you for reading this author’s note and for taking an interest in my story. Enjoy.
~ xoxox mollysue