Held Dysmorphia

All Rights Reserved ©

Summary

A body can be changed by violence, illness, medicine, choice, necessity or desire. What happens afterward belongs to the person who has to live in it. Amara Okafor-MacLeod and her husband Graham build an unconventional multidisciplinary center in British Columbia's Fraser Valley for people living with irreversible physical change. The participants who arrive have little else in common. A Somali refugee considering reconstruction after FGM. A trans woman living with pain after surgery. A man whose prostate cancer is gone but whose sexual self did not survive intact. Others arrive after mastectomy, vasectomy, childbirth, sensory loss and elective modification. But the center's hardest problem is not treatment. It is deciding what counts as success, and who gets to decide. Across its first year, participants challenge clinicians, clinicians challenge one another, and Amara confronts a truth she did not expect: surviving something herself does not give her authority over what another woman should choose. Held Dysmorphia is a novel about bodily ownership, desire and autonomy when healing does not mean restoration, and a successful outcome may look different to the person who has to live with it.

Status
Complete
Chapters
30
Rating
n/a
Age Rating
16+

What Was Secure

By the time Amara Okafor-MacLeod learned that a man could be medically fit and still not know what to do with the body he had been returned to, she had already spent twenty years being told that outcomes were measurable.

The man in question was forty-six, a maintenance supervisor at a distribution facility outside Vancouver, and six months earlier a steel coupling had crushed three fingers of his left hand. The surgeons had done excellent work. His employer had accommodated every restriction. The insurer had approved physiotherapy without argument. Grip strength was improving. Range of motion was within what the occupational therapist called a functional band. Everyone had behaved properly.

Amara sat across from him in a meeting room with a laminate table, two mugs nobody had touched and a whiteboard carrying the faint blue ghosts of somebody else’s action items.

“So the return is failing because of pain?”

“No.”

“Fatigue?”

He shook his head.

“Then tell me what happens.”

He looked at his hand. For several seconds he said nothing, only opened the fingers and closed them again, watching each one complete the movement. “Nothing happens. That’s the problem.”

He flexed the repaired fingers slowly. “I can pick things up. I can use the tools. I can do the job. I just don’t trust it. Feels like someone else’s hand until I hit it against something, and then it remembers it’s mine.”

The disability manager beside Amara shifted the folder on her lap. “Your latest functional assessment says—”

“I know what it says.”

Amara moved her own notebook aside before the conversation could collapse back into documentation. “He’s not arguing with the assessment.”

The disability manager stopped with one page half turned.

Amara asked what he was afraid of, and he surprised all of them by laughing. “Nothing dramatic. Dropping a wrench on somebody, maybe. But mostly looking stupid. I used to know where my hand was without checking.”

By five-thirty she was driving home through rain heavy enough to turn the highway into reflected brake lights. Water had found its way under the cuff of her coat when she crossed the parking lot, and every time she changed lanes the damp fabric touched her wrist.

Graham had sent a message twenty minutes earlier.

I bought salmon. If you’re later than seven I’m eating yours.

She dictated back at the next light. “You would not dare.”

His reply arrived before traffic moved.

Risk register says otherwise.

Traffic moved before she could answer.

Their townhouse in Burnaby had been intended as a temporary decision when they returned to Canada in 2015. Five years later it contained two sets of professional lives, a dining table they had bought after marrying, several boxes neither admitted had survived three moves unopened, and a balcony Graham insisted was too small for the barbecue he had nevertheless placed on it.

He was in the kitchen when she came in, sleeves pushed up, reading something on his phone while a pan hissed behind him.

“You’re late.”

“You threatened my dinner.”

“I established a consequence.”

Amara hung the wet coat over the back of a chair instead of in the closet. “You say that as though hunger has governance.”

“Depends how hungry you are.”

She kissed his cheek on the way past and looked into the pan. “You have murdered it.”

“It’s salmon.”

“Yes. Formerly.”

Graham turned the heat down without admitting anything. He reached behind her for a dish towel, draped it over the wet chair seat beneath her coat and went back to the stove.

He had spent most of his adult life around projects large enough to develop their own weather: oil sands, pipelines, processing facilities, overseas construction packages where a delay in one place could idle a contractor somewhere else. He reduced problems until the sequence inside them became visible. Amara had once watched him explain an eighteen-month schedule to a room full of senior managers using three boxes and a marker because, he said afterward, the original presentation had contained too much information.

It was one of the reasons they had first liked each other in Nigeria. He did not confuse complexity with sophistication. She did not confuse brevity with understanding. Between them, meetings ended more quickly.

“What was today?” he asked once they were eating.

“Hand injury.”

“Bad?”

“Successful.”

He stopped cutting into the salmon and looked up.

“It isn’t ominous,” she said. “That’s the problem.”

She told him about the supervisor while they ate. Graham listened without trying to turn the man into an example of anything larger.

“So he can work.”

“He can do the job.”

“But doesn’t feel safe working.”

“That’s part of it.”

“Doesn’t feel like the hand is his.”

Amara lowered her fork. “Closer.”

Graham ate another mouthful. “What do you do with that?”

For once she had no tidy answer ready. She reached for her glass instead.

“We keep working with him.”

“Who is we?”

“Physio. Occupational therapy. His physician. His employer. Me.”

“And who handles the part where the hand works but doesn’t feel like his?”

Amara set the glass down. “Eat your salmon, Graham.”

He took another bite. “Right.”

────── ❖ ──────

In January 2020, Graham was responsible for a capital program with enough moving parts that his employer had assigned three people to maintain the schedule and another two to argue about it.

He liked the work more than he admitted. Not the meetings, which had metastasized over the years, nor the vocabulary senior management developed whenever a project was in trouble. He liked the moment when abstract intention became physical fact: foundations poured, pipe racks lifted, electrical rooms energized, systems commissioned one by one until somebody could finally stop calling the place a project and start calling it operations.

He also liked being good at it.

Amara knew that because she knew the difference between Graham complaining and Graham wanting to leave. He had complained about every job she had ever known him to hold. Wanting to leave sounded different. It involved silence.

They had both assumed there would be time later to decide whether they wanted another decade of the careers they had built.

Then March arrived.

At first their industries did what every industry did: discovered video meetings, sent emails about unprecedented circumstances and assured employees that business continuity plans existed for precisely this sort of event despite all evidence to the contrary.

Graham began working from the spare bedroom. Amara took over the dining table because, as she pointed out, she had never claimed the spare bedroom was an office simply because he had put two monitors in it.

“You said you didn’t want it.”

“I said I didn’t want to sit in a room with no natural light.”

“There is a window.”

“It faces a wall.”

Graham glanced toward the spare room. “Technically still natural.”

For several weeks they developed parallel professional lives separated by fourteen feet and a closed door. Graham conducted schedule reviews in socks. Amara discussed accommodations and return-to-work planning while trying not to look at the laundry basket behind her laptop. They learned which colleagues had dogs, children, unstable internet and astonishingly loud coffee grinders.

Then the restructuring began.

Amara’s came first.

The call lasted twenty-three minutes. She knew because after it ended she remained sitting at the dining table staring at the clock in the corner of her screen, annoyed by the neatness with which the computer continued measuring a day that had stopped making sense.

Her director was decent about it. There was severance. Benefits continued for a period. References would be provided. Her position had not been eliminated because of performance, which was both true and useless.

When Graham came downstairs, she had already closed the laptop.

“Well?”

“They have discovered they can reorganize occupational health without me.”

He stopped beside the table. “Today?”

“Apparently today was convenient.”

“I’m sorry.”

“So am I. I had files open.”

The corner of his mouth moved before he caught it.

“You may laugh.”

“I wasn’t going to.”

“You were.”

“A little.”

She stood, took her mug to the kitchen and rinsed it although it was already empty. Graham did not follow immediately. When she came back through the room, he had unplugged her laptop charger from the wall and coiled it beside the computer as if the small act could stop the workday from pretending it might resume.

She touched the back of his shoulder on the way upstairs.

For three weeks Graham remained employed. He tried not to behave as though this distinction required apology. Amara tried not to resent the daily evidence that his calendar still mattered to somebody.

Then his company reorganized its capital portfolio.

His call was shorter.

He came out of the spare bedroom carrying his coffee mug. Amara looked up from an article she was pretending to read.

“No,” she said.

“Yep.”

“Seriously?”

“Apparently they can reorganize project delivery without me.”

She stared at him for a second, then laughed so hard she had to put her hand over her mouth.

“That is very insensitive,” Graham said.

“I know.”

“I’ve just lost my job.”

“I know.”

“You could try sympathy.”

“I did it for three weeks. You should have been laid off sooner.”

He pulled out the chair opposite her and sat down. She reached across, took the mug from his hand before he could put it on top of her article, and set it on the coaster beside him.

For the first time since 2008, when they had met in a project office in Nigeria and spent months insisting to themselves that friendship was quite sufficient, neither of them had a workplace to go to. The first two days felt frightening. After that, the strangeness took over.

────── ❖ ──────

By June, Graham had reorganized the storage locker. By July, he had built a spreadsheet for household maintenance. By August, Amara had threatened divorce if he added a priority rating to the freezer inventory.

“It has categories,” he said.

“It has conditional formatting.”

“Different problem.”

“You made the chicken red.”

“The chicken needs using.”

“The chicken is frozen.”

“That is why it is not urgent.”

Amara closed the freezer door with her hip. “I married you in full possession of the facts. That is the only reason you remain safe.”

They were not poor. That mattered. Two long professional careers had produced savings, investments and severance sufficient to turn unemployment into a question rather than an emergency. Mortgage payments continued. Groceries were bought. Neither had to accept the first available job to keep the lights on.

At first, both behaved as though this freedom were temporary and slightly suspicious.

Recruiters called.

Graham spoke to two companies about senior project roles. One would have taken him back toward Alberta. Another offered a portfolio that sounded, from his description, almost exactly like the work he had just lost except with a different logo on the presentations.

Amara updated her résumé, then left it open for four days without sending it anywhere.

“What are you waiting for?” Graham asked.

“I don’t know.”

“That seems unlike you.”

“It is irritating me as well.”

She had spent years helping other people return to work. The language was embedded in her: capacity, restrictions, accommodations, readiness, sustainable return. She knew how quickly an absence from work could begin rearranging a person’s sense of usefulness.

What she had not anticipated was discovering that usefulness and employment were not identical.

Without a caseload, she still read. She followed occupational-health forums, hospital publications, rehabilitation research, disability cases. Former colleagues called because they were used to calling her. Somebody asked what she thought about a worker whose cancer treatment had ended but whose fatigue had not. Somebody else described a woman medically cleared after pelvic surgery who had returned to work and stopped having sex with her husband because sitting through the day left her in pain by evening.

Amara noticed the conversations differently now that nobody was paying her to close them.

The hand supervisor returned to her mind occasionally because his case had been so ordinary.

Medicine repaired something. Rehabilitation measured something. An employer accommodated something. Then the person went home with everything that remained.

One evening in September, Graham found her at the dining table surrounded by notes.

“You applying for something?”

“No.”

“What is all this?”

“I don’t know yet.”

He pulled out the chair opposite her. There were headings on the pages: pain, function, sexual consequence, identity, work, partner, reconstruction, acceptance. Lines connected some words and stopped before reaching others.

Graham read them without touching anything. “This looks like the beginning of a bad consulting slide.”

“It is not a slide.”

“Good. Too many arrows.”

He pointed at function. “You’ve been talking about that for years.”

“I know.”

“And this?” He indicated sexual consequence.

“Also years.”

“Then what’s different?”

Amara leaned back. The chair caught briefly on the edge of the rug before settling. “I used to think the problem was that people were falling between services.”

“And now?”

“I think the services may be doing exactly what they are supposed to do.”

She moved one page aside and found another beneath it. “And that may still leave the person with a problem nobody owns.”

Graham looked at the headings again. He did not correct her wording this time.

“Bigger problem,” he said.

“Possibly.”

“More expensive problem.”

She laughed. “You have no idea what the problem is and already it costs too much.”

“That’s experience.”

He got up to make tea, leaving the papers where they were. A few minutes later he returned with two mugs and put hers on the only clear patch of table without asking whether she wanted one.

Two days later a recruiter called him about another role. He listened for twenty minutes, asked sensible questions and requested the written package. Afterward he stood in the kitchen reading it on his phone. Amara was at the table again.

“Well?”

“Good money.”

“That has traditionally been considered a benefit.”

“Senior role.”

“Also usually positive.”

He scrolled once more, then locked the screen. “It is the same job.”

“No. Different company.”

He gave her a look.

She raised both hands. “I know.”

He put the phone down. “You going back?”

“To what?”

“Occupational health.”

Amara rested her fingertips on the pages between them. Some were new. Most still ended in questions.

“I could.”

Graham waited.

“No,” she said at last. “I don’t think I want to go back yet.”

He nodded once. “Neither do I.”

There was no revelation after that. No dramatic silence in which a future institution presented itself fully formed. The refrigerator hummed. Somebody’s child shouted on the pavement outside. Graham opened the freezer, examined the contents and removed the red-coded chicken.

Amara watched him.

“What?”

“Nothing.”

“You’re looking at me strangely.”

“I am reconsidering the conditional formatting.”

“Finally.”

“Do not become excited.”

He set the chicken on the counter.