When I was born . . .
My mother tells me how my birth was, my mother had to go to the hospital on November 23 at 10 am to have the birth induced because she was suffering from pre-eclampsia.
But I decided to come into the world earlier naturally, on the supposed day of the induction at 5 in the morning my mother started to have strong contractions, not knowing how to react she called the ambulance and then my journey began.
I was already in the hospital with my mother in that warm room preparing sse for me to be born, at 6:30 in the morning I was born.
I cried a lot I felt the smell of my breast for the first time , I was born healthy , tiny and very beautiful . My mother and I stayed in the hospital for 1 day because my mother had contracted an infection.
The next day we were discharged and went home, finally!
Our routine was normal like all the family that has just received a newborn, until I was 3 months old, when I had my first seizure.
That day we were in the living room watching TV when I started to turn blue or purple, the breathing changed, the body became hard and my mother so desperate took me to the hospital in a hurry. Arriving there they did exams , tests , they took a liquid from my spine etc. Several studies were carried out and I was detected with epilepsy , it was a real shock for us . As time went by, other health problems and more convulsions were generated, we spent the first months in the hospital to understand what was wrong with me.
One fine day at home my mother received a call from the hospital, the doctor gave us the diagnosis of my disease and then I was declared with the rare condition SCN8A.
A rare condition that causes epilepsy, developmental delay, vision problems, I don't speak, I can't walk, I can't see and I can't chew anything for that reason I have to wear a tube in my nose to make my meals daily.
